Community organizes 5K cause-tume fundraiser

Published 10:24 am Wednesday, October 7, 2015

Halloween is a time for dressing up, fun, scary stories and this year, hitting the pavement to help a little boy in need.

On Oct. 31, the community is invited to enter the 2015 Cause-Tume Run in downtown Brookhaven to benefit local Tanner Jones, son of Carrie Jones. Doctors have been unable to diagnose the 2-year-old, but his symptoms include being unable to support his head and seizures. The money raised will be used to purchase a special needs vehicle with a wheelchair conversion.

On Jan. 31, 2013, Tanner was born at 35 weeks, but he appeared to be healthy. It took just a few days for Jones to notice some unusual behavior. Soon, they were informed the behavior was seizures, but there was no answer on the cause.

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At just three weeks, he was put on a ventilator in the pediatric intensive care unit with a continuous EEG monitor. Jones recalled that for four days his brain activity had continuous spikes followed by a long flat line.

“This was difficult for me to watch — knowing in my heart, it was very bad,” she said.

On Feb. 25, 2013, the head of the pediatric neurology department said Tanner had Early Infant Epileptic Encephalopathy, a progressive neurological disorder. Jones learned that she and the doctors would be chasing seizures throughout his life.

“I immediately prayed for the Lord to take him home,” she said.

She decided to give him a “do not resuscitate” status, but thankfully she didn’t need it.

“God had very different plans for this little man,” she said. “He came off the ventilator and began breathing on his own.”

One of Tanner’s neurologists said Jones would just have to wait and see what life had and take it a day at a time. He told her to hold on to hope to keep her going through the hard times.

At seven weeks, Tanner was released with special medical equipment. Tanner returned to the hospital at nine months after a particularly bad seizure. This time, doctors removed his previous diagnosis and said there was no way to predict what his future might hold.

“By this time in our journey, I had already become overwhelmed with gratitude, joy and peace,” she said. “Tanner had begun smiling like an angel from heaven.”

Now, she said Tanner continues to improve and grow every day — the seizures occur further apart. He still cannot support his own head or trunk, and he cannot use any of his extremities. The new special needs vehicle would allow the family to travel around town and to the doctor’s office as Tanner continues to grow.

To register, visit wheelsfortanner.com or pick up registration forms at Detour 51. To guarantee a T-shirt on race day register by Oct. 15 for $35. Registration will be accepted up until the day of the race. Late registration will at 8 a.m. Oct. 31. The kids’ race will begin at 8:30 a.m. and the 5K will begin at 9 a.m.